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Affected − but not defined − by muscular dystrophy: ‘We’re all the same, even if we don’t look like it’

Affected − but not defined − by muscular dystrophy: ‘We’re all the same, even if we don’t look like it’

by Mark Sommer | Apr 14, 2025 | Caregiving, Health Equity, Health Equity Featured

Suneel Ram is a spiritual seeker, sings in a band and was the subject of a comic novel two years ago about living with Duchenne muscular dystrophy, a rare genetic disorder that afflicts one in 5,000 boys. Ram isn’t defined by the disease, but it poses a seemingly...
Duchenne caregivers have learned to focus on the person, not the disability

Duchenne caregivers have learned to focus on the person, not the disability

by Mark Sommer | Apr 14, 2025 | Caregiving, Health Equity, Health Equity Featured

Suneel Ram’s needs gradually became greater after he was diagnosed at age 3 with Duchenne muscular dystrophy, a muscle-wasting genetic disorder that afflicts one in 5,000 boys. Today, Ram, 28, requires physical and occupational therapies, help with personal hygiene...
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